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Carl lives in Denmark and has Hemophilia A

Changing Hemophilia® was developed by Novo Nordisk to help address the unmet needs in hemophilia and other rare blood disorders. Together with you and our community partners we are striving for better access to care, diagnosis and multidisciplinary care. Here we aim to provide all people living with rare blood disorders a place that they can come to find support and advice, from us and from others.

Heinz lives in Switzerland and has Hemophilia A

Welcome to Changing Hemophilia®

Welcome to Changing Hemophilia®

Changing Hemophilia® was developed by Novo Nordisk to help address the unmet needs in hemophilia and other rare blood disorders. Together with you and our community partners we are striving for better access to care, diagnosis and multidisciplinary care. Here we aim to provide all people living with rare blood disorders a place that they can come to find support and advice, from us and from others.

Who are we?

Who are we?

Welcome! We are so glad you have decided to visit. Why not find out a little more about who we are and why we have created the Changing Hemophilia® website.

Understanding blood disorders

Understanding blood disorders

There are a number of different rare blood disorders that can affect a range of people, including hemophilia, rare clotting factor deficiencies and inherited platelet disorders. Take a deep dive into the science behind blood disorders.

Life & Hemophilia

Life & Hemophilia

Living with hemophilia is about so much more than the physical impact it can have. Hemophilia is a lifelong condition that affects so many aspects of a person's life.

Read more

Parents & Carers

Parents & Carers

If you have found out that your child has hemophilia, you may be dealing with a range of emotions. Take a look at our parents and carers page for practical advice.

Doctor & Patient

Doctor & Patient

Visiting your healthcare team can be daunting and you may feel overwhelmed. With that in mind, we have developed this short discussion guide.

Changing Hemophilia<sup>®</sup> video library

Changing Hemophilia® video library

We found that sharing knowledge and the experiences of others can provide new information and perspectives. Find a number of videos that portray many stories.

References

Mulder K, Llinás A. Hemophilia. 2004;10 Suppl 4:152-156

Valentino LA. J Thromb Haemost. 2010;8:1895-902

Srivasta A et al, Hemophilia. 2020;26 Suppl 6:1-158

Geraghty S. Orthopedic Complications and Treatment related to Chronic Hemarthrosis. National Hemophilia Foundation. 2012 https://www.hemophilia.org/sites/default/files/document/files/nurses-guide-chapter-9-orthopedic-complications-treatment.pdf   Last Accessed January 2021]

Mulder K. Exercises for people with Hemophilia. World Federation of Hemophilia. 2006 [Available from http://www1.wfh.org/publication/files/pdf-1302.pdf  Last Accessed January 2021]

Eid MA et al. Egyptian Journal of Medical Human Genetics. 2014;15: 139-147

Negrier C et al. Hemophilia. 2013;19:487-498.

Young G. Hematology Am Soc Hematol Educ Program. 2012;362-368.

Wilding, J et al. Obesity Reviews,2018;19:1569– 1584

 

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