Support for parents and carers

If you have recently found out that a loved one has hemophilia, you may be dealing with a range of emotions. The following information should provide you with practical advice on a range of subjects from spotting signs of a bleed in a child, to finding support groups.

All

Finding support

Since the diagnosis, you have probably been doing all you can to support your loved one. However, have you thought about yourself and looked for support?

What to expect following a diagnosis

If you have found out your child has hemophilia, you may struggle with a range of emotions and potentially feel a little overwhelmed. This page has been designed to act as a guide for you.

The HERO Study

HERO (Hemophilia Experiences, Results and Opportunities) is an international, multifaceted initiative that aims to deepen understanding of life with hemophilia. Find out about some of the real world impacts.