The HERO Study

HERO (Hemophilia Experiences, Results and Opportunities) is an international, multifaceted initiative that aims to deepen understanding of life with hemophilia. Find out some of the real-world impacts of living with hemophilia from across the globe.

Find out key results from the HERO study

As the parent or carer for someone diagnosed with hemophilia you may wish to see the research that is going on around the world. The HERO study (Hemophilia Experiences, Results and Opportunities) is an international, multifaceted, multidisciplinary initiative that aims to deepen understanding of life with hemophilia. The HERO study looks at a number of different factors of living with hemophilia, from physical burden to mental health impacts, and even relationships and employment.

References

Novo Nordisk_HERO fact cards.The physical impact of hemophilia greatly influences quality of life. November 2015.

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Talking to your healthcare team

Visiting your healthcare team can be daunting and you may feel overwhelmed. With that in mind, we have developed this short discussion guide.

Finding support

Since the diagnosis, you have probably been doing all you can to support your loved one. However, have you thought about yourself and looked for support?

What to expect following a diagnosis

If you have found out your child has hemophilia, you may struggle with a range of emotions and potentially feel a little overwhelmed. This page has been designed to act as a guide for you.

<b>Changing Hemophilia<sup>®</sup> video library</b>

Changing Hemophilia^® video library

We found that sharing knowledge and the experiences of others can provide new information and perspectives. Find a number of videos that portray many stories.